So here is the app, Nathan Daily.
Nathan Daily

To see Nathan currently please visit our blog at

www.thebailiwickproject.blogspot.com

If you are visiting this blog for the first time please view it in chronological order to see Nathan's regression.

First in a series of three.

These videos were taken today to show a bit of what Nathan experiences during the day. Nathan is more attentive and less desperate in these clips than he often is. He seems to be wanting to communicate something during these bouts of squealing and crying, but has been unable to. There is no obvious trigger. There are times when Nathan is upset about things and is able to communicate the source of his frustration.
These episodes seem to occur more often in the evening. He may even have many a night. They are usually accompanied with silent tears. He once held my hands to his head when I told him he needed to show me what was wrong.
I have felt, in the past, that they may be due to his overall frustration. But, they usually just happen all of the sudden and have been continuing for some time. While this concerns me, it is not the only thing that I am seeking help with, but rather his overall regression.
(Note: We are seeing some return of language. With intense work. But, it still is not even close to where he was.)
Thank you.

2/03/11

Second in a series of three.

2/03/11

This is the final video in this series of three.

December 2010






August 2009
As you begin the journey of Nathan's past year please start at the beginning of his blog. Post is September 4, 2009. Titled "Hi Miss Donna."

Current functioning

Current functioning

Current functioning

Current functioning

These next videos are examples of Nathan's typical behavior. I am seeing his abilities diminish at a rapid rate. Nathan is getting wonderful intervention and participates with his teachers and therapists. He has rarely been out of intense therapy for more than 2 weeks at a time since he was 14 months. His current program, as well as the program before, are intense and of high quality.
Nathan has increasing difficulty in producing words. His language has fallen to just a few words. He is constantly making noises and struggles to form words he has known in the past. He is now almost completely unable to repeat words back and rarely can answer a yes/no question.

December 2010

2:00 am
Wonders around at night. Opens and closes doors.
Sometimes turns lights on.
Struggles to fall asleep. If he takes melatonin he wakes up at 4:00 am.
We have been working with him for over a year. Before then he had a regular bedtime and even put himself to bed if he was tired.

November 2010

September 2010

September 2010

August 2010

Summer 2010

Spring 2010

Spring 2010

Spring 2010

August 2009

July 2009

Please Read This...

To our wonderful doctors, teachers and therapists who are helping us find answers. This blog was started as a class project for Nathan to help increase communication with his teacher about his life. The entries quickly ended as Nathan seemed to change in the course of a week.

The following are things that we noticed beginning the end of November 2009. Many things came suddenly.

Loss of handwriting (left hand)
Inability to take spelling tests. First written and then soon unable to take with letter tiles.
Continual sucking on nonfood items. Even the shopping cart as he walked next to it.
Uncontrollable laughing. Often accompanied with silent tears.
Inability to fall asleep, after years of an 8:30 bedtime.
Talking out of side of mouth. (has had tendency in the past, but more extreme)
Loss of language. (Recently increasingly difficult to answer yes no questions, even with prompting.)
Inability to repeat spoken words.
Currently he makes continual noise and has trouble forming the few words he has left.

I am sure I am forgetting some...

The following videos should be viewed in chronological order so the regression can be seen.
Thank you.

Mommy came to the Pumpkin Patch!

I keep telling Mom how happy I was that "Mommy come the pumpkin patch." And my mommy tells me how happy she was to come too.

One of my very favorite things to do is play Mr. Potato Head. I hope I never outgrow it.

What letter is next?

I love to practice writing.

(It is just hard to hold the pencil the right way. But, I will never give up.)

Vacation Time.

I love to paint and make things.

I painted this on my vacation.

Climbing

I like to climb.

My brother Chase.

This is my brother. His name is Chase. He likes watermelon a lot.

My cats.

These are my cats.
This is Kakoshi.












This is Alikay.

Tablerock Lake

This is me and Brooke at the lake.